Allyson Lock, of Masterton, MNZM, for services to people with rare health disorders
Allyson Lock was diagnosed with the fatal neuromuscular pompe disease in 2010 and has since dedicated herself to supporting the wider community of patients with rare disorders. She is the President of the New Zealand Pompe Network, a registered charity that supports Pompe patients and their families. Her work as President has involved providing practical and often financial support to other members. She has tirelessly advocated for access to enzyme replacement therapy in New Zealand. She helped set up a patient support organisation for sufferers of gaucher disease in Australia. Mrs Lock has served on the Board of Amicus Therapeutics for five years as a patient advisory member.