Mrs Jenny Noble, of Tauranga, MNZM for services to health, particularly research for rare diseases
Jenny Noble works as Field Officer/Administrator for Lysosomal Diseases New Zealand, providing support, clinical care and research into a particularly rare group of diseases. She helped to establish the New Zealand Organisation for Rare Disorders and has served on the Board of the International Society for Mannosidosis and Related Diseases (ISMRD). She has been the central fundraiser and programme organiser of five ISMRD conferences. Her fundraising efforts led to a partnership between ISMRD and other advocacy groups and foundations to provide a large grant for research into mucolipidosis. Mrs Noble co-authored an article in the Journal of Inherited Metabolic Diseases in 2002